Network of Strength Message Boards: Today I had my first radiation treatment - Network of Strength Message Boards

Jump to content

Page 1 of 1
  • You cannot start a new topic
  • You cannot reply to this topic

Today I had my first radiation treatment

#1 User is offline   DebbieR 

  • Newbie
  • Pip
  • Group: Members
  • Posts: 3
  • Joined: 29-July 10
  • Gender:Female
  • Location:Orlando Florida

Posted 29 July 2010 - 04:35 PM

Hi I'm Debbie and I'm from Florida. I was diagnosed in June with DCIS. I just fell apart. So much has happened in my life this year that with this happening to me, well I fell to pieces. My lumpectomy was done on June 25 and today was my first day of radiation. To say I'm scared was and is an over simplification. I do have a support system in my family but they all live in another state, so for me, I really do feel like I'm alone. I have tried to stay strong but some days I just sit and cry. I have a hard time looking at myself in the mirror and I'm still trying to come to terms with the word cancer. I feel so alone. Is this normal?
0

#2 User is offline   bobbiejayne12345 

  • Advanced Member
  • PipPipPip
  • Group: Members
  • Posts: 1059
  • Joined: 21-July 09
  • Gender:Female
  • Location:rhode island
  • Interests:there are many hobbies i enjoy.reading, photography, knitting crocheting, scrapbooking and enjoying nature at the pier.also like fishing and gardening.

Posted 29 July 2010 - 06:19 PM

hi debbie. hello and welcome to these message boards. i have sent you a message but i wanted to answer your post here also because i have felt exactly the same way as you are feeling many times. hang in there. you are not alone. this journey can be very overwhelming. you will meet many wonderful people here who have also felt similar things .good luck with radiation. the hotline is also wonderful. they will match you with a survivor to talk to. the number is 800-221-2141 and they are open for calls all day and night.hugs from bobbiejayne.
0

#3 User is offline   2boysmom 

  • "F" Bomber...
  • PipPipPip
  • Group: Members
  • Posts: 1128
  • Joined: 27-October 09
  • Gender:Female
  • Location:Illinois
  • Interests:My kids!! Fav thing to do is watch my boys play sports, which includes my husband who will still not give up his basketball or football league even though I have told him that I WILL NOT push him in a wheel chair when he is old because he has sprained/broken so many body parts!! (Although after all of this BC crap, I might have to take that back) I love hanging out with our family who all pretty much live within a 2 mile radius of us!! Reading, lunching/daily phone convos w/ my BFF of the past 25 years (Love Ya, girl), lazing by my MIL's pool in the summer, planting and watching flowers grow (until about August, then I usualy am OVER it) That's about it, pretty simple, just the way I like it!!!

Posted 29 July 2010 - 06:33 PM

Hi Debbie

You have come to the right place!! We have all been where you are right now, scared, overwhelmed, sad, angry, etc. I'm so glad that you have a great support system, but no one will ever "get it" unless they have walked this journey themselves, and everyone here has certainly done that. Come back often whenever you want to vent, cry, laugh (yes, we do that here sometimes too) celebrate, etc We will always be here for you.

xoxoxo

Laurie
Sept 09 - Felt lump while putting on bra
9/29/09 - Mammo, U/S, Biopsy (Scary look on surgeon's face told me EVERYTHING)
10/5/09 - Got "the call"
Path = Triple Negative, Grade 3, IDC
Tumor = 3cm, grew to 5 cm in one month....shit!
BRCA-
CT Scan & Bone Scan = CLEAR!!!
Participant in NSABP B-40 Clinical Trial
Chemo started 11/18/09
4 rounds Taxotere, Xeloda, Avastin every 3 weeks DONE
4 rounds A/C, first 2 w/ Avastin every 3 weeks DONE
BLM with TE's scheduled for 5/26/10 DONE
Left TE replaced 6/26/10 due to skin necrosis and infection (OUCH!)
Avastin infusions every 3 weeks started 8/17/10
Radiation started 8/30/10
WORRYING does not take away tomorrow's TROUBLES, it takes away today's PEACE.
0

#4 User is online   I wanna grow old 

  • Advanced Member
  • PipPipPip
  • Group: Members
  • Posts: 131
  • Joined: 19-April 10
  • Gender:Female
  • Location:Florida
  • Interests:Taking care of my three little girls.
    Playing piano
    Planting in my garden

Posted 29 July 2010 - 09:20 PM

View PostDebbieR, on 29 July 2010 - 05:35 PM, said:

Hi I'm Debbie and I'm from Florida. I was diagnosed in June with DCIS. I just fell apart. So much has happened in my life this year that with this happening to me, well I fell to pieces. My lumpectomy was done on June 25 and today was my first day of radiation. To say I'm scared was and is an over simplification. I do have a support system in my family but they all live in another state, so for me, I really do feel like I'm alone. I have tried to stay strong but some days I just sit and cry. I have a hard time looking at myself in the mirror and I'm still trying to come to terms with the word cancer. I feel so alone. Is this normal?



Debbie,

Hi. Im in Florida too sister... Where are you?
Completely normal. And though you can't see it right now it will get better.

Leslie
0

#5 User is offline   carolyn45dcis 

  • Advanced Member
  • PipPipPip
  • Group: Members
  • Posts: 55
  • Joined: 05-June 10
  • Gender:Female

Posted 29 July 2010 - 10:33 PM

Welcome Debbie-

Normal???? What's that??? Just kidding- I was diagnosed with DCIS in May and nearly went crazy....Instead I drank for the first week, cried for the second week and was pretty much in denial for the third week. Luckily I found this website and it has been a lifesaver. The love, support and encouragement will get you through!! Hang in there!
Lots of Love
Carolyn
0

#6 User is online   mrsnjband 

  • Advanced Member
  • PipPipPip
  • Group: Members
  • Posts: 251
  • Joined: 09-March 10
  • Gender:Female
  • Location:Mannford, Oklahoma
  • Interests:Inflammatory Breast Cancer, 2 year survivor,
    I love my kids & grandkids,
    Amatuer Photographer

Posted 30 July 2010 - 12:13 AM

So sorry you had to join the club, but welcome to a great place. BC can be overwhelming for anyone at any time. So it's okay to cry, be angry, we've all been there and done that. So we will be here to support you. Take care & hang in there, you'll get through it!

Love & prayers NJ
~Norma June~
Nov 10, 2007 First Sympton of IBC, itching & peau d'orange
Nov 10 day - Round Antibiotics
Dec, 2007 Mammogram & Ultrasound: clear
Dec, 2007 First Biospy, negative
Jan, 2008, MRI, 3mm mass
Jan, 2008, Second Biospy, positive
Jan 10, 2008 Diagnosis of IBC, Right; ICD, ER-PR-Her2-
Jan 26, 2008 - Dense Dose AC X's 4
March, 2008 - 2 Units Blood
March, 2008 - Taxol, 8 single doses
June 13, 2008 - Taxotere,3 1/2 doses
July 10, 2008; Simple Mastectomy Left
July 10. 2008; Modified Radical right, Complete Node Discetion, 5 positive
Aug 2008, Radiation
Oct 2, 2008 Last Scar Boost
Nov 10, 2008 Cancer Free!!!!
Dec 2008, Wound & Frozen Shoulder PT
Still dealing with anemia but getting better!
0

#7 User is offline   creativelady 

  • Advanced Member
  • PipPipPip
  • Group: Members
  • Posts: 211
  • Joined: 30-April 10
  • Gender:Female
  • Interests:My family first. Husband, 2 girls and 1 boy.
    Love gardening, crazy quilting, sewing, stained glass, faux painting,and decorating.
    We love walking, biking and kayaking.

Posted 30 July 2010 - 06:06 AM

Hi Debbie,

I am so sorry that you have to be here, but I am glad you have found us. This site has been a support to me since my diagnosis in April. We all understand the shock, the frustrations,the pain, and the absurdity of things that follow the BC diagnosis. I walked around in a shock sort of the first few months. I felt like I was talking about someone else. The ladies here helped me to realize that we are in this together and never alone. They let me know there is never a stupid question. I could state my frustrations, fears, and even make fun of some of the surreal things that go along with BC. The people here are fantastic and supportive. They all understood.
Take care. You have my prayers.
All my best,
Debra
'08 Previous lump removed rt breast-benign-hyperplasia
2/10 yearly mammogram left breast abnormal
2/10 diagnostic mammogram and Ultra sound-biopsy recommended
3/10 Sterotactic biopsy-failed-lesion too close to chest wall
3/10 Surgical biopsy
4/10 Good Friday- recieved the news High grade comedo DCIS and Intermediate grade DCIS
4/10 MRI-okay
4/10 Re-excision-margins clear of cancer, Atypical ductal hyperplasia present in margins
5/10 appointments with Radiation oncologist, oncologist, plastic surgeon- decision for BLM with Immediate reconstruction
6/10 Bilateral mastectomy with Tissue expanders placed
Nodes-1 pN0(i+)
Pathology-Intermediate grade DCIS,LCIS, ADH, Florid Hyperplasia - Glad they are gone!
6/10 PET scan-clear!!!
7/10 Second opionion - NYC-news 8/10-surgery is enough, no chemo or hormone treatment-oberservation 6 month cycles
8/10 Exchange surgery

Friends are angels who lift us to our feet when our spirits have trouble remembering how to fly -anonymous
0

#8 User is offline   Gloria 

  • Advanced Member
  • PipPipPip
  • Group: Members
  • Posts: 1528
  • Joined: 21-May 08
  • Gender:Female
  • Location:Arlington, VA 22207
  • Interests:RVing, singing Barbershop Harmony, skiing.

Posted 30 July 2010 - 07:46 AM

Welcome. It is always good to let out your emotions. You don't want to keep them inside. Take charge, too. Try to find something to do every day that is unrelated to BC. Listen to music, take a walk, watch a funny movie, anything that makes you relaxed and happy.

I hope your radiation went well. From what I hear, the first one is the most difficult. Everyone is different, though. Some people have wonderful technicians that help them through the process. I hope that is true in your case.

Come back often!

Gloria
Gloria
Age 65 married, two kids: 30 and 28.
Mammo 2-08 (no findings)
Breast Exam found lump 4-16-08
Mammo and Ultrasound 4-29-08
Ultrasound biopsy 5-6-08
DX 5-9: Hormone receptive, HER2-Neg. 1.5 cm IDC Stage 1
Simple RMastectomy and Sentinal Node 6-4-08
No reconstruction.
Nodes clear, Oncotype DX showed no need for chemo.
Taking Arimidex. (and Glucosamine, Condroitin, calcium with D)
Mammo left 2/9/09 negative.
MRI 8/26/09 negative.
Mammo 2/3/2010 negative
MRI 8/2/2010 Clear!!!
www.caringbridge.org/visit/gloriahurdle
0

#9 User is offline   DebbieR 

  • Newbie
  • Pip
  • Group: Members
  • Posts: 3
  • Joined: 29-July 10
  • Gender:Female
  • Location:Orlando Florida

Posted 30 July 2010 - 09:18 AM

View PostI wanna grow old, on 29 July 2010 - 10:20 PM, said:

Debbie,

Hi. Im in Florida too sister... Where are you?
Completely normal. And though you can't see it right now it will get better.

Leslie


im from Orlando and you?
0

#10 User is offline   Maya II 

  • Advanced Member
  • PipPipPip
  • Group: Members
  • Posts: 278
  • Joined: 10-March 10
  • Gender:Not Telling
  • Location:Europe/US Ex-Pat
  • Interests:Culture, cinema, travel, hiking, skiing.

Posted 30 July 2010 - 09:22 AM

I'm so sorry for your diagnosis. It's very difficult to believe when your doctor tells you. BC can take over your life, so do as Gloria says and make an escape from BC, if only for a moment here and there during your day. Work at making these escapes longer. You'll may come to realise you can be more in charge than you think.

Rads are tough for awhile, being left alone with that big machine. Imagine someone you love is there with you. I arranged for my rads to be the last appointment of my day, so I could go right home and cool down the tissues with an ice pack. Use aloe and whatever your doc may prescribe to help your skin recover.

Come here anytime.

DCIS, Surgery, Radiotherapy
BC Listener at cancer centre
Yoga instructor
Teach English as 2nd language
Widow
Posted Image

Wanderer


"On s'approche de la fin du voyage. Mais la fin est un objectif, pas une catastrophe."
("One approaches the journey's end. But the end is a goal, not a catastrophe.")
--George Sand
0

#11 User is offline   DebbieR 

  • Newbie
  • Pip
  • Group: Members
  • Posts: 3
  • Joined: 29-July 10
  • Gender:Female
  • Location:Orlando Florida

Posted 30 July 2010 - 09:22 AM

Thank you all for responding! And yes this is all surreal. But I think a support group is just what I need, people that really understand/
0

#12 User is offline   lulu123 

  • Member
  • PipPip
  • Group: Members
  • Posts: 21
  • Joined: 29-July 10
  • Gender:Female
  • Location:California
  • Interests:Gardening, Needlework, Scrapbooking, loving my
    Shih Tzu, Socializing w/ my Nifty After Fifty Friends

Posted 30 July 2010 - 09:37 AM

Hi Debbie,

I am new to this site also but have already had some wonderful replies and
comments. So...I really think you have found a wonderful resource for strength
and support. We are all entitled to our own little "Pity Party". I certainly
had mine when I was diagnosed in May. I have since had left breast mastectomy
and will be starting radiation next week. There is one thing I know for sure and
that is a positive attitude will go a long way with this "journey". Is it easy?
Absolutely not, but we women are strong and we can dig down deep and find that extra
boost that we need to get thru this. Try and have some fun with it. I had my hair
cut really really short, spiked it and did the tips pink. How about that? My friends
loved it. Let us know how you are doing, o.k.?

Shirley
Shirley
0

#13 User is online   I wanna grow old 

  • Advanced Member
  • PipPipPip
  • Group: Members
  • Posts: 131
  • Joined: 19-April 10
  • Gender:Female
  • Location:Florida
  • Interests:Taking care of my three little girls.
    Playing piano
    Planting in my garden

Posted 30 July 2010 - 01:13 PM

View PostDebbieR, on 30 July 2010 - 10:18 AM, said:

im from Orlando and you?

Bradenton/Sarasota area

I will send you PM.

Leslie
0

#14 User is offline   alakat 

  • Advanced Member
  • PipPipPip
  • Group: Members
  • Posts: 298
  • Joined: 16-July 09
  • Gender:Female
  • Location:Alabama

Posted 30 July 2010 - 02:03 PM

Hi Debbie,

I'm so glad you found us. I remember feeling so alone, even with my husband and friends until I found this site because no one understands unless they're walking in your shoes. I'm a year out now past my diagnosis, 4 surgeries later, and I still find myself having bad days although most are good now and you'll have them again when it doesn't all feel so bad. :) We'll be here for you!

Hugs,

Kathy
55 y/o married mother of 2 sons, 26 and 28
found lump right breast on SBE July 8, 2009
Mammogram/US July 10, 2009; informed probable malignancy by radiologist
Core needle biopsies July 13, 2009
Confirmed invasive lobular carcinoma, grade 2/3, er/pr +, HR -, July 14, 2009
Bilat. mastectomies August 4, 2009 with SNB, confirmed ILC, 1.9 cm. right breast, no nodes involved; Papilloma found left breast (two previously excised). Tissue expanders placed, oncotype score 24
Drains left in Rt breast 2 1/2 months- removed 9/25/09, chemo started 9/28/09- 4 rounds of Cytoxan/Taxotere. Major expander infection developed at drain site (probable MRSA) necessitating expander removal November 12, 2009
Completed chemo 12/17/09 deemed NED!!!
Survivor Breast cancer/brain aneurysm repair... time for calm in my life
Scheduled for DIEP May 14, 2010 (delayed-to be rescheduled :( )
DIEP scheduled for May 21, 2010
Muscle sparing free TRAM flap May 21, 2010
0

#15 User is offline   valarie 

  • Advanced Member
  • PipPipPip
  • Group: Members
  • Posts: 57
  • Joined: 01-January 10
  • Gender:Female
  • Location:Houston, Texas
  • Interests:Married for 25 years.
    I enjoy breeding russian blue cats for show. Its my hobby which takes up a lot of time... a life saver during my cancer treatment so far... I can pick up a kitten when I get sad and it changes my mood.

Posted 02 August 2010 - 07:45 PM

View PostDebbieR, on 29 July 2010 - 04:35 PM, said:

Hi I'm Debbie and I'm from Florida. I was diagnosed in June with DCIS. I just fell apart. So much has happened in my life this year that with this happening to me, well I fell to pieces. My lumpectomy was done on June 25 and today was my first day of radiation. To say I'm scared was and is an over simplification. I do have a support system in my family but they all live in another state, so for me, I really do feel like I'm alone. I have tried to stay strong but some days I just sit and cry. I have a hard time looking at myself in the mirror and I'm still trying to come to terms with the word cancer. I feel so alone. Is this normal?


Hi Debbie, Im glad you joined us. You are not alone. I too had DCIS in 2 places in the left breast. I fell apart. It doesn;t matter what kind of cancer we have, we all know what the word Cancer does.. its scary, we have so many questions, what does this mean to my future. I was up and down all thru my surgeries.. relieved the cancer was gone and had great margins.

Hang in there with the radiation. I am currently doing radiation, and once you get past the first few treatments, it is just routine. I got emotional at first ... but have done very well. If you want to talk about it, I would be happy to help you thru it. I havent had any side effects... starting to feel tired as I get close to the end.

Will be thinking about you,

Hugs,
Valarie
Valarie
Age 52

Lump felt in right breast Oct. 09
Set up Mammogram 11/4/09; called back for Diagnostic Mammogram of the Left Breast and
Ultrasound of Tumor in Rt breast - fibroadnoma
Mammogram showed calcifications in left breast, suspicious for malignancy.
Sterotactic Needle Biopsies of 2 calcifications at 3 oclock and 6 oclock left breast 12/16
Path report: 12/23 Diagnosed with DCIS grade 1 and 2 noninvasive - thru 2 calcifications ER/PR+
MRI done on 12/27
seen 1st breast cancer surgeon 12/31/09 - Happy New Year
will seek 2nd opinion week of 1/4/10
2nd surgeon opinion 1/6/10 - more conservative approach, decisions,
1/28 - Plastic Surgeon consultation. Recommending breast reduction after surgery.
Decided on 1st opinion, wide lumpectomy plus reconstruction
Lumpectomy scheduled 3/3/10, then wait on Pathology results 3 days
Reconstruction (Reduction) scheduled for 3/10/10,Marking 3/2/10
Pre-Op 2/23/10, met with oncology nurse navigator
3/3/10 Surgery. 3 Lumpectomies, 2 from left to remove DCIS and 1 from right to remove fibroadnoma. Sentinel Node Biopsy - Negative, woo hoo.
3/10/10 - Bilateral Breast Reduction.
3/16/10 - Pathology Report on breast reduction - No more cancer found, Praise God!
7/8/10 - Started Radiation Therapy 25 treatments
8/11/10 - Last Radiation Treatment - DONE!!
9/23/10 - appt. with surgeon
0

#16 User is offline   DebbieL 

  • Advanced Member
  • PipPipPip
  • Group: Members
  • Posts: 540
  • Joined: 09-August 09
  • Gender:Female
  • Location:Philadelphia,Pa

Posted 03 August 2010 - 06:32 AM

Welcome! As the others have said, it does get better with time. We "get it" because we have all felt the shock of being told we have cancer. What you are going through now is completely normal. We are always here for anything you need.
DebbieL IDC dx 11/7/08 Bilateral mastectomy 12/3/08. 3cm, er/pr pos, her2 neg,node neg.Onco score 15, no chemo recommended. Currently on Femara since 1/09. Also had total hysterectomy on 12/29/08 due to concern of mets to ovaries, dx severe endometriosis, no mets. 49 years old
0

#17 User is offline   pattyd 

  • Advanced Member
  • PipPipPip
  • Group: Members
  • Posts: 457
  • Joined: 05-June 08
  • Gender:Female
  • Location:New Jersey

Posted 05 August 2010 - 08:58 AM

Debbie,
So sorry that you've joined a sorority that noone wants to join. Having been through radiation myself, it does seem like an endless process. Please take it one day at a time and before you know it you'll be looking at the end of treatment. Do you have any friends who could support you? Also, you could check with your hospital to see if there is a support group of any kind or even the American Cancer Society. We're here for you at any time.
Pat
0

Page 1 of 1
  • You cannot start a new topic
  • You cannot reply to this topic

1 User(s) are reading this topic
0 members, 1 guests, 0 anonymous users