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Escape Velocity, Clenched Fists, Girl Spit, and Love Escape Velocity, Clenched Fists, Girl Spit, and Love

#1 User is offline   writergirldreams 

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Posted 28 July 2010 - 02:42 AM

This is from my blog at writergirldreams.com

Maybe it will help.


Escape Velocity, Clenched Fists, Girl Spit, and Love


25,000 miles per hour.

That's how fast you'd have to go.

To break free.

Break free from the pull of the earth's gravitational pull.

How fast,

her former blond brain asks,

do you have to go,

to break free from cancer?

I think I need to lose some weight. This body could definitely be leaner and lighter.

Mostly though, this brain, how do you get your thoughts lighter, all in the name of velocity?

Is hope light?

Is anger weight?

It is very difficult to maintain perspective when you are in cancer's gravitational pull, it requires so much of your attention and diligence. You start measuring your life by the length of your treatment. As if somehow your life has been suspended and won't resume again until treatment is over. From these moccasins, this is how it is.

You can say all kinds of nice things to a person about looking ahead, staying hopeful, and this too shall pass, but I am here to tell you, when you are in the thick of it, it is so very hard to do. Even when you are trying really hard.

I am trying every day to break free, to slowly shift what I can, and the only thing I can is how I think about what is happening to me. I can't change so much of this, so much of this has already been planned for me. Every day though, I try again to change how I think about it.

Break free. Defy gravity, like in my favorite musical, Wicked.

Cancer takes a huge part of your attention and your day. The only thing I can do is be very intentional and use clenched fists and girl spit when I have to, to take back as much as I possibly can for me. Take it back. Forcefully.

Take it back.

How does a person do this? These are some of the things that work for me.

Walk. Specifically in nature, preferably near water. I'm not talkin about the high school track. Get out on some path or trail where there are trees and birds and quiet, and water if you can. Water is very good. You put one foot in front of the other and you keep stepping. It doesn't matter your pace; the longer the walk the better. Get in nature. Get quiet. Focus on your breathing. Move.

Meditate. Also, preferably in nature. Find yourself some peaceful place. There are a few places I go and still looking for new ones. One of them is an old cemetery. There are all kinds of statuary of angels and gothic crosses and I find a place to sit and I get quiet. I get very quiet. I meditate, which for me is focused breathing and trying to clear my head of all thoughts. Every time you think, you just tell yourself "breathe." You will find you can go longer and longer with wide open spaces in your brain. Longer and longer.

Pray. I say out loud "Help me. Show me. Forgive me. Heal me. Love me. Guide me. Open me. Soften me. Strengthen me. Hear me. Hear me. Hear me." Then I say out loud all the names of whoever comes to mind, including my own.

Create. Do something you are passionate about. Something that makes your heart race and your spirit blossom and has a huge sense of urgency for you. For me this is writing, words and songs. Sitting down at my piano, or typing on a keyboard, is a sacred space for me. I am always pleased with myself there.

Help. Help someone. This can be as simple as being a force for good with as many people and animals as you can. A smile. A kind word. It can be the smallest thing. It can be the simplest thing. It has helped me so much writing my blog and writing on some of the cancer message boards. When someone writes back I have given them advice they used for chemo, or made them laugh, or they realized they aren't alone, WOW, I soar.

Forgive. It requires so much energy to hold on to hurt and anger and disappointment. Can you set yourself free? Forgive. For giving over to your higher power in order to set yourself free.

Love. Oh listen to this, thank you mft, sent to me in a beautiful mermaid card bought at the Sawdust Festival in Laguna Beach. I much rather would have been there with you, without cancer, but I'll take the card :)

Love, the Infinite

Love will be larger than all your lessons, longer than all your mistakes, sweeter than all the sad sorrows that life will mete out to you. Love is what matters now; love is what will matter in the end.

Daphne Rose Kingma


I re-commit myself to these things. You are my witness.

These things that make me light,
so I can get enough velocity going
to defy gravity
and break free
from cancer's gravitational pull.

Walk.
Meditate.
Pray.
Create.
Help.
Forgive.
Love!

Defying Gravity

Something has changed within me

Something is not the same
I'm through with playing by the rules
Of someone else's game
Too late for second-guessing
Too late to go back to sleep
It's time to trust my instincts
Close my eyes: and leap!

It's time to try
Defying gravity
I think I'll try
Defying gravity
And you can't pull me down!


Killing cancer cells is the least of it.

Getting the gravity of it
out of your brain
is the tricky part.

Here goes...
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#2 User is offline   DebbieL 

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Posted 28 July 2010 - 03:19 AM

I think you have just said what all of us feel! Beautiful!
DebbieL IDC dx 11/7/08 Bilateral mastectomy 12/3/08. 3cm, er/pr pos, her2 neg,node neg.Onco score 15, no chemo recommended. Currently on Femara since 1/09. Also had total hysterectomy on 12/29/08 due to concern of mets to ovaries, dx severe endometriosis, no mets. 49 years old
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#3 User is offline   creativelady 

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Posted 28 July 2010 - 05:42 AM

Perfect! Cancer does become your focus, I agree. It does not matter if you use creativity or humor to deflect the situation it is so hard to defy gravitiy of our thoughts and the gravity of the situation. You said it all.
'08 Previous lump removed rt breast-benign-hyperplasia
2/10 yearly mammogram left breast abnormal
2/10 diagnostic mammogram and Ultra sound-biopsy recommended
3/10 Sterotactic biopsy-failed-lesion too close to chest wall
3/10 Surgical biopsy
4/10 Good Friday- recieved the news High grade comedo DCIS and Intermediate grade DCIS
4/10 MRI-okay
4/10 Re-excision-margins clear of cancer, Atypical ductal hyperplasia present in margins
5/10 appointments with Radiation oncologist, oncologist, plastic surgeon- decision for BLM with Immediate reconstruction
6/10 Bilateral mastectomy with Tissue expanders placed
Nodes-1 pN0(i+)
Pathology-Intermediate grade DCIS,LCIS, ADH, Florid Hyperplasia - Glad they are gone!
6/10 PET scan-clear!!!
7/10 Second opionion - NYC-news 8/10-surgery is enough, no chemo or hormone treatment-oberservation 6 month cycles
8/10 Exchange surgery

Friends are angels who lift us to our feet when our spirits have trouble remembering how to fly -anonymous
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#4 User is offline   suzanjr 

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Posted 28 July 2010 - 09:37 AM

I have been off this site for quite some time..........my BC sister Gloria emailed this to those of us who were in the fight at the same time and have become friends. I have just passed my 2 year mark and my husband passed away 1 yr ago in August from prostate cancer. Sometimes, in trying to live and survive, you dont stop and remember all of those who are still in the fight.........So I apologize to all of you who might have slipped my mind this past year. Know that there are those of us who are thinking of you and doing whatever it is to stop this ugly beast.
Take heart, be strong and continue to rage daily.
Writergirldreams your post was truly beautiful.............Suzan
DX July 08 after finding a lump
Surgical biopsy July 20th
IDC right breast 2cm.
No clean margins. 2nd surgery
August, SNB - nodes negative :)
no clean margins





3rd reexcision August 30th. Clean.
30 radiation sessions, completed Oct. 24th
Oncotype dx #12 No need for chemo :)
Originally prescribed Arimidex. Discontinued and changed to Femara Dec 09

We can't direct the wind, but we can adjust our sails.
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#5 User is offline   cpk 

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Posted 28 July 2010 - 05:31 PM

View Postsuzanjr, on 28 July 2010 - 11:37 AM, said:

I have been off this site for quite some time..........my BC sister Gloria emailed this to those of us who were in the fight at the same time and have become friends. I have just passed my 2 year mark and my husband passed away 1 yr ago in August from prostate cancer. Sometimes, in trying to live and survive, you dont stop and remember all of those who are still in the fight.........So I apologize to all of you who might have slipped my mind this past year. Know that there are those of us who are thinking of you and doing whatever it is to stop this ugly beast.
Take heart, be strong and continue to rage daily.
Writergirldreams your post was truly beautiful.............Suzan


Good to hear from you Susan...you've been missed. Hope you're doing well!

Cheryl
age: 47
previous surgical excision after baseline mamo - right breast 10/99: atypical lobular hyperplasia
annual mammogram 11/09, suspicious findings
diagnosed: 12/4/08 right breast - invasive ductaal carcinoma Grade 3
ER+ 91%, PR+96%, HER2/Neu-
01/14/09 - lumpectomy (1.1 cm IDC tumor), Stage 1
sentinel node biopsy, 2 nodes removed - both negative
dirty margins - DCIS Grade 3 (not previously dectected)
2nd excision 2/5/09 - "clean enough" margins (0.2 DCIS in margin)
BRCA negative
Oncotype-DX score - 28 high intermediate category
Taxotere/Cytoxan 4 rounds - completed 5/13/09
36 radiation treatments - completed 8/3/09
Tamoxifen started - 11/9/09
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#6 User is offline   Laurel 

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Posted 31 July 2010 - 08:35 AM

And your book will be published when? Good stuff!
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#7 User is offline   writergirldreams 

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Posted 03 August 2010 - 03:35 PM

Thanks everyone, I really appreciate your comments, and it feels great when something resonates with one of you, especially with one of you, my sisters!!

I know there are folks out there that don't post or reply, but they do read, and maybe hearing these thoughts will help. I know it has really helped me give them a voice. Tremendously. You don't necessarily have to write a blog, but I recommend journaling throughout your experience. It helps get the stuff out of your head when you put it onto paper. and it's great to go back in and see where you were, and where you are now.

I have to confess, not being sure what would happen with me, I wanted something that my kids would always have. I figured writing this thing from Mother's Day to Mother's Day, which would encompass my treatment, would be kind of a gift to them. This is not a negative thing, I am very hopeful, but, you just never know, and I am glad I have done this. My boys are 19 and 12, and I know they are proud of me, and more than that, have gotten to know me better, as a person, not just as Mom.

I have always been a writer, although I never did anything about the things I write. The blog changed all of that for me. It has finally given me the courage to put myself out there. That is one of the shifts in me since the diagnosis. If not now, when? It made me get out there and do what I know I was meant to do, other than of course, being a fabulous Mom.

Hugs and love and all kinds of good wishes for all of you out there, just doing the best you can, just like me.

wgd
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